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MitoAction
Description
The mission of MitoAction is to improve quality of life for all who are affected by mitochondrial disorders through support, education and advocacy initiatives.
Abbreviation: MitoAction
Reference: MitoAction
MitoPedia topics: MitoGlobal Organizations
Contact details
Chairman
- Kira Mann, CEO
- E-mail: [email protected]
President
- MitoAction Board of Directors
- Philip Borden
Business address
- MitoAction
- PO Box 51474
- Boston, MA 02205
- E-mail: [email protected]
- For general inquiries and information: [email protected]
- Mito 411 Support Line: [email protected]
Additional information
To do this, MitoAction's goals include:
- To improve quality of life for adults and children affected by mitochondrial disease.
- To internationally raise awareness about mitochondrial disorders, and their relationship to other diseases.
- To provide specific and practical materials that help patients to manage their symptoms
- To aggregate and connect the international mitochondrial disease community
- To engage pharmaceutical industry working toward therapeutic approaches to mitochondrial disorders.
- To create tools which empower patients and caregivers to be advocates for themselves or their children.
All are welcome and encouraged to join MitoAction. Membership is FREE.
