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Difference between revisions of "MitoAction"

From Bioblast
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|mitopedia topic=MitoGlobal Organizations
|mitopedia topic=MitoGlobal Organizations
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=== The organization's goals ===
:::* To improve quality of life for adults and children affected by mitochondrial disease.
:::* To internationally raise awareness about mitochondrial disorders, and their relationship to other diseases.
:::* To provide specific and practical materials that help patients to manage their symptoms
:::* To aggregate and connect the international mitochondrial disease community
:::* To engage pharmaceutical industry working toward therapeutic approaches to mitochondrial disorders.
:::* To create tools which empower patients and caregivers to be advocates for themselves or their children.
All are welcome and encouraged to join MitoAction. Membership is FREE.


==Contact details==
==Contact details==
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::::Mito 411 Support Line: [mailto:[email protected] [email protected]]
::::Mito 411 Support Line: [mailto:[email protected] [email protected]]


==Additional information==
To do this, MitoAction's goals include:
* To improve quality of life for adults and children affected by mitochondrial disease.
* To internationally raise awareness about mitochondrial disorders, and their relationship to other diseases.
* To provide specific and practical materials that help patients to manage their symptoms
* To aggregate and connect the international mitochondrial disease community
* To engage pharmaceutical industry working toward therapeutic approaches to mitochondrial disorders.
* To create tools which empower patients and caregivers to be advocates for themselves or their children.
All are welcome and encouraged to join MitoAction. Membership is FREE.


[[Image:MitoGlobal.jpg|right|120px|link=http://www.bioblast.at/index.php/Mitochondrial_Global_Network|MitoGlobal]]
[[Image:MitoGlobal.jpg|right|120px|link=http://www.bioblast.at/index.php/Mitochondrial_Global_Network|MitoGlobal]]
Listed under '''[[MitoGlobal Societies]]'''.
Listed under '''[[MitoGlobal Societies]]'''.

Revision as of 11:15, 4 April 2017


high-resolution terminology - matching measurements at high-resolution


MitoAction

Description

MitoAction.JPGThe mission of MitoAction is to improve quality of life for all who are affected by mitochondrial disorders through support, education and advocacy initiatives.

Abbreviation: MitoAction

Reference: MitoAction



MitoPedia topics: MitoGlobal Organizations 


The organization's goals

  • To improve quality of life for adults and children affected by mitochondrial disease.
  • To internationally raise awareness about mitochondrial disorders, and their relationship to other diseases.
  • To provide specific and practical materials that help patients to manage their symptoms
  • To aggregate and connect the international mitochondrial disease community
  • To engage pharmaceutical industry working toward therapeutic approaches to mitochondrial disorders.
  • To create tools which empower patients and caregivers to be advocates for themselves or their children.

All are welcome and encouraged to join MitoAction. Membership is FREE.

Contact details

Chairman

Kira Mann, CEO
E-mail: [email protected]

President

MitoAction Board of Directors
Philip Borden


Business address

MitoAction
PO Box 51474
Boston, MA 02205
E-mail: [email protected]
For general inquiries and information: [email protected]
Mito 411 Support Line: [email protected]


MitoGlobal

Listed under MitoGlobal Societies.